New update - General Practice Data for Planning and Research (Data opt out's)
The wider use of data held in GP Surgeries has been in the press over the past few weeks and so we are using this platform to advise patients of the situation.
This is a national programme and we are supporting the plans set out by NHS Digital. NHS Digital is the national IT and data service that supports NHS clinicians at work, help patients get the best care and use data to improve health and care outcomes.
NHS Digital's daily collection of GP data will support vital health and care planning and research. The data held in GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data called the General Practice Data for Planning and Research data collection (GPDPR).
NHS Digital has engaged with the British Medical Association (BMA), Royal College of GP's (RCGP) and the National data Guardian (NDG) to ensure the relevant safeguards are in place for patients and GP Practices.
NHS Digital is the national custodian for health and care data in England and has responsibility for standardising, collecting, analysing, publishing and sharing data and information from across the health and social care system, including General Practice.
NHS Digital has collected patient data from GP Surgeries for over 10 years and the process needs upgrading and changing.
Patient data collected from your GP record is needed to support a wide variety of research and analysis to help run and improve NHS services. Whilst data is collected in other care settings such as hospitals is valuable in understanding specific services, it is the data in GP Surgeries that helps NHS England understand whether the health care system as a whole is working for patients.
NHS Digital will not collect patients names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth and full post code) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital. This process is called pseudonymisation and means that patients will not be identified directly in the data. NHS Digital will be able to use the software to convert the unique codes back to data that could directly identify patients in certain circumstances, and where there is a valid legal reason. Coded medical information relating to conditions, symptoms and diseases will be collected from patient medical records.
NHS Digital has engaged with the British Medical Association, Royal College of GPs and the National Data Guardian to ensure relevant safeguards are in place for patients and GP Practices.
Full details of the General Practice Data for Planning and Research (GPDPR) scheme can be found by clicking here.
If you do not wish for your data to be shared for purposes except your own care, you can opt out of the data collection and sharing exercises. There are two types of opt out.
Opt out 1 - this will prevent your data being collected from your GP record by NHS Digital and we need a completed opt out form from you to mark the appropriate codes in your medical record to prevent your data being released to NHS Digital. Here is the form you need to complete. Click here. Please return the completed form to the Practice.
Forms returned after 1st September 2021 will see codes applied to your medical record and no more of your data released after the next new main extraction set for 1st September 2021.
Opt out 2 - this is an opt out you will need to complete if you do not wish for any confidential healthcare data collected from all healthcare providers to be shared with other organisations for research and planning, unless there is an exemption to this. This opt out is known as the 'National Opt Out'. More details on this opt out and how to record an Opt out 2 is available in this weblink here. Your preferences can be recorded online or via the telephone. The number is 0300 303 5678. The lines are open Monday to Friday 9am to 5pm.
Please do not call the Practice to record opt out 2.